引用
公眾的科學想像：Taiwan Biobank的參與民眾經驗、風險與科學樂觀主義
Public Imaginaries of Science: Taiwan Biobank Participants' Experiences, Risk, and Scientific Optimism
作者：李宛儒（Wan-Ju Lee）、蔡友月（Yu-Yueh Tsai） | 首次發表於 2025-05-07 | 線上優先出版 Online First
DOI：
研究論文（Research Articles）
DOI：
研究論文（Research Articles）
論文資訊 | Article information
摘要 Abstract
（本文尚待排版與校對）
本文帶入「公眾的科學想像」的概念，採用結合量化與質性的混合式研究方法（mixed methods），以詮釋取徑由下而上分析TBB參與者對國家型基因資料庫的態度、認知與想像。首先，本文分析指出，參與者從個人、公民與國家三個層次，將「參與」視為一種利他的公民實踐，隱含了貢獻台灣下一代健康的集體情感，並鑲嵌於公民責任與國家發展的台灣性想像中。其次，TBB參與者對「誰代表台灣人」的想像，不僅普遍將四大族群視為代表台灣人基因的人群分類，也強調納入具台灣身份證的新住民，呈現出基於台灣地理疆界且具有合法公民身分的生物公民權想像。最後， TBB參與者在權衡風險的決策過程中，部分受訪者呈現出「閉著眼睛捐贈」的特性，受訪者強調從「利大於弊」的角度，較不關注「現在不可見、無法想像」的風險，更展現出對國家生醫科技島未來願景的樂觀期待。本文分析TBB參與者作為「承諾公眾」的多元想像與集體願景，藉此突顯科學計劃中公眾主體性的意涵，並闡明其賦予國家型基因資料庫的公共意義與正當性。
關鍵詞：Taiwan Biobank、公眾的科學想像、參與動機、風險認知、科學樂觀主義
本文帶入「公眾的科學想像」的概念，採用結合量化與質性的混合式研究方法（mixed methods），以詮釋取徑由下而上分析TBB參與者對國家型基因資料庫的態度、認知與想像。首先，本文分析指出，參與者從個人、公民與國家三個層次，將「參與」視為一種利他的公民實踐，隱含了貢獻台灣下一代健康的集體情感，並鑲嵌於公民責任與國家發展的台灣性想像中。其次，TBB參與者對「誰代表台灣人」的想像，不僅普遍將四大族群視為代表台灣人基因的人群分類，也強調納入具台灣身份證的新住民，呈現出基於台灣地理疆界且具有合法公民身分的生物公民權想像。最後， TBB參與者在權衡風險的決策過程中，部分受訪者呈現出「閉著眼睛捐贈」的特性，受訪者強調從「利大於弊」的角度，較不關注「現在不可見、無法想像」的風險，更展現出對國家生醫科技島未來願景的樂觀期待。本文分析TBB參與者作為「承諾公眾」的多元想像與集體願景，藉此突顯科學計劃中公眾主體性的意涵，並闡明其賦予國家型基因資料庫的公共意義與正當性。
關鍵詞：Taiwan Biobank、公眾的科學想像、參與動機、風險認知、科學樂觀主義
（本文尚待排版與校對）
This article employs the concept of "public imaginaries of science" with an interpretative approach to explore the experiences, and values of participants in Taiwan Biobank (TBB) by adopting a mixed methods design that integrates both quantitative and qualitative research. First, the article argues that participants interpreted their participation as altruistic civic actions at personal, civic, and national levels. Their motivations embodied a collective sentiment and responsibility to contribute to the health of Taiwan's next generation, intertwined with imaginaries of Taiwaneseness concerning future visions for national development. Secondly, in discussions about "who represents Taiwanese", TBB participants highlighted the four great ethnic groups as representatives of Taiwanese genome and emphasized the inclusion of new residents with Taiwanese ID cards. This reflects an imaginary of biological citizenship grounded in Taiwanese subjectivity, the genetic uniqueness of national populations, and Taiwanese citizenship. Finally, TBB participants demonstrated a common characteristic of "participation with eyes shut." Generally believing that the benefits outweighed the risks, they paid little attention to "currently invisible and unimaginable risks" and expressed optimistic expectations towards the national development as "the Biomedical Technology Island." This article analyzes the diverse imaginaries and collective visions of TBB participants as "promissory publics," highlighting the significance of public subjectivity in scientific projects and elucidating the public meanings and legitimacy they confer upon the national biobank.
Keywords: Taiwan Biobank, public imaginaries of science, participation motivations, risk perceptions, scientific optimism
This article employs the concept of "public imaginaries of science" with an interpretative approach to explore the experiences, and values of participants in Taiwan Biobank (TBB) by adopting a mixed methods design that integrates both quantitative and qualitative research. First, the article argues that participants interpreted their participation as altruistic civic actions at personal, civic, and national levels. Their motivations embodied a collective sentiment and responsibility to contribute to the health of Taiwan's next generation, intertwined with imaginaries of Taiwaneseness concerning future visions for national development. Secondly, in discussions about "who represents Taiwanese", TBB participants highlighted the four great ethnic groups as representatives of Taiwanese genome and emphasized the inclusion of new residents with Taiwanese ID cards. This reflects an imaginary of biological citizenship grounded in Taiwanese subjectivity, the genetic uniqueness of national populations, and Taiwanese citizenship. Finally, TBB participants demonstrated a common characteristic of "participation with eyes shut." Generally believing that the benefits outweighed the risks, they paid little attention to "currently invisible and unimaginable risks" and expressed optimistic expectations towards the national development as "the Biomedical Technology Island." This article analyzes the diverse imaginaries and collective visions of TBB participants as "promissory publics," highlighting the significance of public subjectivity in scientific projects and elucidating the public meanings and legitimacy they confer upon the national biobank.
Keywords: Taiwan Biobank, public imaginaries of science, participation motivations, risk perceptions, scientific optimism
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